Advocacy 

• Legal Aid Foundation of Los Angeles

• National Organization for Social Security Claimant's Representatives

• Rare Disease Advocacy  (rarediseases.org/advocate) (NORD)

• Rare Disease Patient Foundation & Advocacy Groups

• Social Security Disability Program

 

Dystonia Advocacy Network

 

The Dystonia Advocacy Network (DAN) is an organization that brings dystonia afflicted individuals together to educate members of Congress about dystonia, and to advocate for continued support of research funding. ​Each Spring Dystonia Advocates meet in Washington, D.C. for a two-day advocacy event. To learn more about this important effort, go to dystonia-advocacy.org.​

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